Medical Info

Welcome Healthcare Providers! Your relationship with families and with individuals who have Down syndrome is an important one. We appreciate the opportunity to direct you to helpful information on various healthcare related topics and Down syndrome. 11081460_10205889897945044_1104095799820321404_n

Are you delivering a diagnosis of Down syndrome to new or expectant parents? What you say and how you deliver the message matters! Click this link for important information: NDSC Physician’s Guide

Has the newborn’s family been referred to Early Steps? Early Steps provides early intervention services to children with Down syndrome from birth to 3 years old in Palm Beach County.

Have you referred the family to Gold Coast Down Syndrome Organization? Being involved in a parent support organization like Gold Coast ensures that families have information to make informed decisions about education and advocacy during a child’s life.

Healthcare Information for Families of Children with Down Syndrome

AAP-Clinical Report: Health Supervision for Children with Down Syndrome

Gold Coast Down Syndrome Organization provides support to the medical community in many ways:

  • We are an informational resource for your patients and families with a diagnosis of Down syndrome.
  • We have materials available for your office to support your patients with Down syndrome and their families.
  • Links on this website provide extensive information about diagnosis and medical care.
  • Contact us by email or phone 561-752-3383.

Down Syndrome: The Journey Ahead in English and Spanish is a video produced by the Down Syndrome Association of Greater Cincinnati. This 15 minute film highlights parents talking about their journey raising a child with Down syndrome. Watch the video in English here:  Watch the video with Spanish subtitles here:

Click here to learn about the National Down Syndrome Adoption Network
For a comprehensive website of briefs and reports on Down syndrome health issues, compiled by Dr. Len Leshin, M.D., F.A.A.P., pediatrician and father of Avi, born with Down syndrome, click here
Medical Professionals might also be interested in our Health and Nutrition information page.
Brian Skotko, M.D., M.P.P. is the sibling of an individual with Down syndrome and a resident physician at Children’s Hospital Boston and Boston Medical Center. He has dedicated his professional energies toward children with cognitive and development disabilities. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome. He is a graduate of Duke University, Harvard Medical School, and Harvard’s John F. Kennedy School of Government. Dr. Skotko authored major research on how physicians deliver a diagnosis of Down syndrome to new and expectant parents. Click here for his website. Click here for the Boston Children’s Hospital Down Syndrome Program website.

Looking for information about healthcare for adults with Down syndrome?
Click this link for the Adult Down Syndrome Center and this link for our web page for Adults with Down Syndrome.

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