General Resources

ABLE ACT Florida ABLE accounts are here! Floridians with Down syndrome and other disabilities can now open an ABLE Account. This is great news for the average family that up until now has been unable to save money for their child’s future due to limitations and an adverse impact on government benefits. Another great source of information about individuals with disabilities and asset building is:  NDI Real Economic Impact website.

ADOPTION INFORMATION These websites provide information for those considering adopting a child who has Down syndrome:
National Down Syndrome Adoption Network  and  Reeces Rainbow

ADVOCACY  Disability Rights Florida has the mission to advance the quality of life, dignity, equality, self-determination, and freedom of choice of persons with disabilities through collaboration, education, advocacy, as well as legal and legislative strategies.
Florida Developmental Disabilities Council has the mission to advocate and promote meaningful participation in all aspects of life for Floridians with developmental disabilities.

DELIVER THE DREAM RETREATS  Deliver the Dream is a Florida organization that helps families experiencing a serious illness or crisis in their lives by offering annual retreats, free of charge, so they can relax, enjoy time together, forge new friendships and create support groups with other families dealing with the same illness/crisis.

DISABILITY.GOV  U.S. federal government website for information on disability programs and services nationwide. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing.

 

DISABILITY RESOURCES fiscal and general resources for parents of children and adults with disabilities.

DOWN SYNDROME SUPPORT GROUPS IN FLORIDA Broward Gold Coast Down Syndrome OrganizationTreasure Coast Down Syndrome Awareness Group, Down Syndrome Association of Miami – (786) 292-1967Down Syndrome Association of Central FloridaDown Syndrome Association of JacksonvilleFun Coast Down Syndrome Association, Manasota Buds

211 HELPLINE PALM BEACH COUNTY The mission of the 211 Helpline Palm Beach/Treasure Coast (formerly crisis line) is to connect people to services 24 hours a day by understanding their individual emotional, financial and community needs and to support the health & human service system as a whole.

RESPITE SERVICES  The Arc of Palm Beach County is currently providing respite services.  Click the link or call 561-721-2818 for further information. Grandma’s Place also is a great community resource for respite assistance.  Click the link or call 561-753-2226.

SPEECH AND LANGUAGE  Here is a link to the blog of Jennifer J. Meyers Bekins, MS CCC-SLP from The Jane & Richard Thomas Center for Down Syndrome at Cincinnati Children’s Hospital Medical Center. The topic is Communication and Down syndrome and it contains the IEP Toolkit, researched and developed by Gretchen Carroll.

TECHNOLOGY The Center on Technology and Disability is an online resource providing information on assistive and instructional technology supporting learners with disabilities.

TRAVEL The Transportation Security Administration (TSA) launched TSA Cares, a new helpline number designed to assist travelers with disabilities and medical conditions, prior to getting to the airport. Travelers may call TSA Cares toll free at 1-855-787-2227 prior to traveling with questions about screening policies, procedures and what to expect at the security checkpoint.

VIDEOS THAT PROMOTE AWARENESS

NDSC Self-Advocate Resolution 

NDSC More Alike Than Different Documentary

NDSS Dreams Video DSG Just Like You Video

 

Programs

Information and Support

"Talk Abouts"

Educates families through workshops, structured support groups, Face Book support groups and telephone and in-person consultations 

Best Start

Newborns through Pre-K

Offers new parents information, education, connections, support and programs 

The Learning Program

Children and Teens

Gives parents the tools to navigate their children’s educational and life issues while kids work on their reading, math, social and life skills 

Educational Advocacy

Ages 2 ½ to 22

Provides families with an experienced advocate free of charge to help manage IEPs, classroom placements and more so that children can thrive in a learning environment tailored to their needs.

The Exceptional Educators Program

Trains classroom teachers, paras, school administrators and school district staff to be the most effective educators for children with Down syndrome.

Adult Enrichment Programs

Ages 18+

Encourages adults to continue to learn and create through activities that develop social skills, literacy, self-advocacy and a healthy lifestyle

Social Activities for All Ages

Because sometimes we just want to have fun!

The DownRight ExtraOrdinary Walk

Committed to raising community awareness of the abilities of people with Down syndrome for over a quarter of a century!