Resource Links

This page is a Work-In-Progress! Please feel free to email us at info@goldcoastdownsyndrome.org to suggest resources that might be helpful on this page.

ABLE ACT: Florida ABLE accounts are here! Floridians with Down syndrome and other disabilities can now open an ABLE Account. This is great news for the average family that up until now has been unable to save money for their child’s future due to limitations and an adverse impact on government benefits. Another great source of information about individuals with disabilities and asset building is:  NDI Real Economic Impact website.

ADOPTION INFORMATION: These websites provide information for those considering adopting a child who has Down syndrome.
National Down Syndrome Adoption Network
Reeces Rainbow

ADVOCACY
Disability Rights Florida has the mission to advance the quality of life, dignity, equality, self-determination, and freedom of choice of persons with disabilities through collaboration, education, advocacy, as well as legal and legislative strategies.
Florida Developmental Disabilities Council has the mission to advocate and promote meaningful participation in all aspects of life for Floridians with developmental disabilities.

CEREBRAL PALSY Information Link – cerebral palsy is the most common physical disability in childhood, with a child being born with CP every hour. The goal of this organization is to raise awareness globally for cerebral palsy and other birth injuries. We are happy to include them here as a resource.

DELIVER THE DREAM RETREATS – Deliver the Dream is a Florida organization that helps families experiencing a serious illness or crisis in their lives by offering annual retreats, free of charge, so they can relax, enjoy time together, forge new friendships and create support groups with other families dealing with the same illness/crisis.

DISABILITY.GOV: U.S. federal government website for information on disability programs and services nationwide. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing.

DOWN SYNDROME SUPPORT GROUPS IN FLORIDA: Broward Gold Coast Down Syndrome Organization, Treasure Coast Down Syndrome Awareness Group, Down Syndrome Association of Miami, Down Syndrome Association of Central Florida, Down Syndrome Association of Jacksonville, Fun Coast Down Syndrome Association, Manasota Buds

211 HELPLINE PALM BEACH COUNTY – The mission of the 211 Helpline Palm Beach/Treasure Coast (formerly crisis line) is to connect people to services 24 hours a day by understanding their individual emotional, financial and community needs and to support the health & human service system as a whole.

ONLINE MAGAZINES HIGHLIGHTING DISABILITY ISSUES –
Florida Crossroads
Parenting Special Needs

RESPITE SERVICES – The Arc of Palm Beach County is currently providing respite services on Saturdays at its West Palm Beach location only. Click the link or call 561-721-2818 for further information.

SPEECH AND LANGUAGE:  Here is a link to the blog of Jennifer J. Meyers Bekins, MS CCC-SLP from The Jane & Richard Thomas Center for Down Syndrome at Cincinnati Children’s Hospital Medical Center. The topic is Communication and Down syndrome and it contains the IEP Toolkit, researched and developed by Gretchen Carroll.

TECHNOLOGYThe Center on Technology and Disability is an online resource providing information on assistive and instructional technology supporting learners with disabilities.

TOURETTE SYNDROME: Local support group hosted by the Tourette Syndrome Association of Florida will begin meeting in the PBC Library West Boca Raton Branch beginning November 17, 2016. Contact Scott Anderson 954-609-9603 or sander1303@hotmail.com

TRAVEL: The Transportation Security Administration (TSA) launched TSA Cares, a new helpline number designed to assist travelers with disabilities and medical conditions, prior to getting to the airport. Travelers may call TSA Cares toll free at 1-855-787-2227 prior to traveling with questions about screening policies, procedures and what to expect at the security checkpoint.

VIDEOS THAT PROMOTE AWARENESS
NDSC Self-Advocate Resolution
NDSC More Alike Than Different Documentary
NDSS Dreams Video
DSG Just Like You Video

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